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A new SHH-UK Research Summary exploring patient-reported treatment experiences among people living with Long COVID and ME/CFS.
Study
Eckey M et al. Patient-reported treatment outcomes in ME/CFS and Long COVID. Proceedings of the National Academy of Sciences U.S.A. 2025; 122(28): e2426874122.
Key message
The survey found substantial similarities in symptoms and treatment responses between Long COVID and ME/CFS. Treatment experiences varied considerably between individuals: pacing and fluids with electrolytes were frequently reported as helpful, while many respondents reported that graded exercise therapy did not help or worsened symptoms. Importantly, this was an observational survey and cannot establish that treatments caused improvements.
Important information: This research summary is provided for general information only and does not constitute medical advice or treatment recommendations. The study reports participants’ experiences of treatments and does not establish that any treatment is safe or effective for Long COVID or ME/CFS. Please speak to an appropriately qualified healthcare professional before starting, stopping or changing any treatment.
