Research Summary: Reshaping Long Covid Care Through Patient-Reported Needs

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Long Covid patient-reported needs are the focus of this week’s research summary. This longitudinal study explores how healthcare services could better meet the evolving needs of people living with Long COVID.

Research Summary

This week’s research summary explores how Long Covid services could be redesigned around what patients say they actually need.

Researchers followed people previously treated at a specialist Long Covid clinic in Italy to understand how their symptoms, quality of life and unmet healthcare needs changed over time. Participants completed follow-up questionnaires that were compared with information collected during their earlier clinical assessment.

Key findings

  • Most Long Covid symptom clusters increased since the initial consultation, particularly musculoskeletal, neurocognitive and psychological symptoms.
  • Around 80% of participants continued to experience at least one symptom cluster.
  • 22.2% reported unmet needs for diagnostic testing and specialist services.
  • 15.4% reported unmet psychological support.
  • Women consistently reported greater unmet healthcare needs than men.
  • Although symptom burden increased, participants’ own perception of their overall wellbeing also improved over time.

Why does this matter?

The researchers suggest that Long Covid patient-reported needs services may need to move beyond simply searching for a cure and instead focus on helping people live well with the condition through coordinated, patient-centred care. They propose improvements including structured education, multidisciplinary care pathways, proactive case management and routine measurement of quality of life

Reference

Milic J, Pelizzoni A, Gozzi L, et al.

Reshaping long COVID care through patient-reported needs.

BMC Infectious Diseases (2026).

https://doi.org/10.1186/s12879-026-13773-x

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