Other Online Support for Long Covid, PoTS & MCAS

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At SHH-UK, we know that peer support can make a real difference. Connecting with others who understand what you’re going through can reduce isolation and provide practical encouragement.

Alongside our own groups, there are several other organisations offering online support that may be helpful.


💛 Long Covid Support online support groups

If you are a member of the Long Covid Support Facebook group, you can access a range of online sessions, including:

  • 🎵 Long Covid Choir – Meets every Wednesday – more information by clicking here.
  • 🌬️ Opera Breathing for Long Covid – Usually Tuesdays, 5:30pm–6:30pm (via Zoom) – click here for more information.

These sessions combine connection, breathing techniques and community support.

Visit the Long Covid Support Facebook group for details and joining information.


💙 PoTS UK online support groups

PoTS UK runs regular online peer support groups throughout the month for people living with Postural Tachycardia Syndrome (PoTS).

These groups are:

  • Volunteer-led (by people affected by PoTS)
  • Supportive and informal
  • Open to adults aged 18+ (you can attend any regional group if the time suits you)

They also offer:

  • A monthly group for under 18s
  • A newly diagnosed / awaiting diagnosis group
  • An afternoon group
  • A men-only group
  • A parents and carers group
  • Occasional topic-focused sessions

You can register via the PoTS UK website.


🧬 Mast Cell Action online support groups

Some people living with Long Covid also experience mast cell activation syndrome (MCAS).

Mast Cell Action runs weekly UK community Zoom sessions:

🗓 Thursdays

🕖 7:00pm–8:30pm

These informal meet-ups provide a safe space to:

  • Share experiences
  • Learn from others
  • Access peer support

Visit the Mast Cell Action website for joining details.


💬 Know of Another Support Group?

If you are aware of other appropriate online support groups for healthcare workers with Long Covid, we would love to hear from you.

Please email: supportgroup@shh-uk.org

Together, we can help ensure no healthcare worker with Long Covid feels alone.

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