New to and Living with Long Covid

Developing Long Covid often requires adopting a new way of life - e.g. learning to pace, not being able to do everything you used to be able to do. This can be hard. We provide information to help you on your Long Covid journey.

In this section of the knowledge base there is information about:

What Long Covid is
Available support groups available
Managing some of the symptoms of Long Covid
Seeking medical help when you have Long Covid
Best practice guidelines.

Keep an eye on the website because we are gradually adding more information to this section of the knowledge base.

POTS, ME/CFS and Long Covid as Neuroimmune Disorders

Evidence shows POTS, ME/CFS and Long COVID share neuroimmune mechanisms, supporting recognition as biological, not psychological, conditions.

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Menopause and Long Covid: New RCN Guidance

RCN guidance highlights overlapping menopause and Long COVID symptoms, calling for holistic care, workplace support, and better research.

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Long Covid Can Change Everything — Protect Yourself

Learn about the impact of Long Covid on someone's life and why it's worth avoiding covid infections.

Updated Booklet: Cognitive Dysfunction in ME/CFS & Long Covid

Download the fully updated guide from ME Association on brain-fog and cognitive dysfunction in ME/CFS and Long Covid.

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Long Covid Is Not Over – Ongoing Impact & Support

A CBC news video calling for the recognition of the ongoing impact of Long Covid

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Understanding Long Covid

A leaflet to help healthcare professionals understand what Long Covid is.

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What is Long Covid?

In this short video Dr Thomas Piggot explains what Long Covid is.

PoTS Common in Long Covid Patients

Study finds 31% of Long Covid patients have POTS, mainly younger women, with reduced activity and fitness levels.

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Long Covid: Financial and Work Impacts in Scotland

Report shows Long Covid causes income loss, job insecurity, and higher costs, calling for urgent policy action.

Common Symptoms of Long Covid

Long Covid: Orthostatic Intolerance Is More Common Than Thought

Study finds ~20% of long COVID patients show orthostatic intolerance (POTS or hypotension); lean test recommended for all cases.

Long Covid

Long-Term Effects of COVID-19 Infections

Explore how COVID-19 causes lasting health impacts, from organ damage to Long Covid, and why prevention is vital.

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